New #introduction. Born and raised in the US, I've lived in East Timor and Portugal, and now in the UK for over 15 years. I work(ed) with social movements, and gave a big push to one here in the UK. Dabbled in anthropology. But if I would study formally again (really bad idea for so many reasons!) it would probably be STS.
#LongCovid and #MECFS changed my life massively. I post about politics, disability and chronic illness a lot.
I am trying to blog more, and failing at new offline hobbies. But my number one hobby now is Fitz, my newly rehomed dog.
Interests: #airquality 😷, land, housing, environmental justice, small media, #history, decolonization, #maps, basic rights, #luddism, #lowtech, #degrowth, sufficiency, #DIY, #repair, dogs
Ed Yong explains the most life-limiting aspect of my illness(es).
A "Read Me" for anybody getting to know me now. Pinning to my profile.
https://www.theatlantic.com/health/archive/2023/07/chronic-fatigue-long-covid-symptoms/674834/
For those who cannot pay or don't have the energy for paywalls:
Not since I discovered Cartola’s “Preciso Me Encontrar” with the bassoon have I heard such exciting bass woodwind instrumentation. I mean not saying I know much about music. Thanks to NPR for introducing me to Ymusic https://ymusicensemble.bandcamp.com/album/ymusic
(I suppose samba has a shared lineage with chamber music -> chorinho -> samba)
People I saw in the park in last 5 minutes - 15 degrees and sunny and the song birds are going for it -
- toddler with amazing multicoloured shoes being coaxed up the hill by his weary mum pushing his stroller
- scruffy guy with a black bag with three beer cans
- middle aged jogger with pot belly in a dayglow orange shirt huffing it up the hill
- older bald guy, rolly in his mouth, singing a spiritual, with two chihuahuas on leads he held, one short hair, one long hair
- three people of indeterminate relation, a big ginger guy with shorn sides and a bun on top, a smaller young woman with long brown hair, trainers, and a woman in pink short sleeves and lycra black leggings and riding boots and a black beanie with nose piercing
- an older man rubbernecking looking at me suspiciously as I type this, his black hood up
- tired looking unshaven guy in gray jeans and boat shoes carrying an insulated travel mug
Long Covid, reinfection
Troubling but good reporting in The Sick Times (new online outlet) on reinfection https://thesicktimes.org/2024/02/13/covid-19-reinfections-are-further-disabling-people-with-long-covid/ #LongCovid
An older family member with poor eyesight is going to have necessary cataract surgery that will either improve or make the situation worse - and either way will make him very visually impaired for 1-4 weeks. He is very computer dependent.
Wondering if there is a simple explainer for making Windows computers and Android mobiles more accessible, like starting with the basics? Thinking Narrator for Windows, and Voice Access and Lookout for Android. Or someone reliable who could help him out remotely? (Would pay.)
Listening to “The New Folk Sound of Terry Callier” recorded in 1965. Such brilliance. Callier should have been a household name https://terrycallier.bandcamp.com/album/the-new-folk-sound-of-terry-callier
Reading E P Thomson’s “The Making of the English Working Class” (1963) for the first time. Will read as him as he encourages us to read history. (An agent of history, embedded in, and limited by, his time.)
Enjoyed the intro, including his famous quote “I am seeking to rescue the poor stockinger, the Luddite cropper, the ‘obsolete’ hand-loom weaver, the ‘utopian’ artisan, and even the deluded follower of Joanna Southcott, from the enormous condescention of posterity”
Listening to a podcast on Carnival “blocos” and “direito à folia” (right to revelry) as a constitutional right in Brazil. When Lula’s current Finance Minister was mayor of São Paulo he introduced street carnival and even in Brazil there are saddos who want to end it (Pt) https://www1.folha.uol.com.br/amp/ilustrissima/2024/02/carnaval-de-rua-nao-e-bagunca-e-direito-constitucional-diz-guilherme-varella.shtml
Can we have some revelry? Because pancakes aren’t gonna do it for me any more…
Tory destruction, personal toll
It seems to be going from filthy to cespit around here. The few professional cleaners the city had haven’t been here in months. Did I mention our council is broke, and has raised taxes 4% this year?
This is literally taking a toll on my mental and physical health. Tomorrow’s crash will be 100% caused by 14 years of Tory government.
If it is single-use or “disposable”, unless it is in our imagination or dreams, we need to be using less of it.
Bamboo grows somewhere. Seaweed too. Somewhere that is needed by the earth and/or people for something else.
Disposability is like patriarchy, ableism or white supremacy. It is so hardwired into our societies that people really struggle to come to terms with it. And the powers that be are very good at co-opting our will to do better.
Living with #LongCovid #MECFS. Work(ed) with social movements and helped start one, dabbled in social anthropology. Rehomer of a dog. Housed in a coop 🏳️🌈
Interests: #airquality 😷, land, housing, environmental justice, #history, decolonization, #maps, basic rights, #luddism, #lowtech, #degrowth, sufficiency
, disability 🌻
[Banner photo of small boat above sea grass from UN in East Timor, by Martine Perret, CC license]
[Profile pic: hand painted small black dog with red jumper]